PACK's WP1 Documentation
DDI-KEN-APHRC-PACKs-WP1-PrevalenceofPD-2024-v1.0
African Population and Health Research Center
2024-10-18
Nesstar Publisher
Version 1.0 (October 2024)
Parkinson’s Disease Diagnosis, Perceptions, Awareness, and Care in Kenya
PACKs WP1 Prevalence of PD
PACKs WP1 Prevalence of PD
DDI-KEN-APHRC-PACKs-WP1-PrevalenceofPD-2024-v1.0
Dr Gershim Asikii, MD PhD
Dickens Samuel Aduda MPH, PhD
Benard Muok PhD
Dr. Juza Huka, MMed
Dr. Thomas Kwasa (MMed)
Razak M Gyasi MPhil, PhD, PD
Sylvia Muyingo MSc, PhD
Charles Owuora Obonyo, PhD
Muthoni Gichu, MB.ChB, MSc
Sylvester Orao
Copyright © APHRC, 2024
Nesstar Publisher
Michael J. Fox Foundation for Parkinson’s Disease Research
Demographic and Health Survey [hh/dhs]
N/A
N/A
Parkinson's disease (PD) is one of the major neurodegenerative conditions in sub-Saharan Africa (SSA), particularly among aging adults. However, little is known about the epidemiology, service availability, and population-level awareness of PD due to the weak capacity of the primary health care system and PD-related poor knowledge in the SSA setting. There is an apparent lack of data on PD in SSA, including Kenya. This study aims to 1) validate tools for screening, estimate the prevalence of PD at the population level, and assess the knowledge and attitudes of influential community advisors; 2) assess the healthcare service availability and readiness to manage PD, and 3) estimate patient caseloads in neurology clinics and identify barriers and facilitators to diagnosis and referral along the care cascade. The Work package (WP) will employ a concurrent mixed-methods approach, including household surveys nested within APHRC-led Hewlettplanned national surveys among older people in Kenya (n=1500). We will conduct in-depth interviews (n=40) with community health advisors, including traditional healers, community health volunteers, and medicine sellers. WP2 will assess service availability and readiness in three tertiary hospitals, one each from Nairobi and Siaya, and a sample of primary care facilities in Kisumu (n=50) using a systems assessment tool customized for PD. WP3 will estimate patient caseloads in 3 neurology clinics of the selected tertiary hospitals in WP2 and conduct in-depth interviews with PD patient-caregiver dyads (n=45). Focus group discussions (n=3) with patient support groups and caregivers will be conducted. The findings are expected to inform and support community education programs, the development of care models, capacity-building programs for healthcare workers, and policy decisions for improving PD care in SSA.
KENYA
National Coverage (Nairobi County,Kisumu County, Kakamega County,Nakuru Countyi, and Mombasa County )
Older people aged 60+ years, Older people aged 60+ years attending neurology clinics and/or Adult clinics
N/A
Face-to-face [f2f]
N/A
Data collection was done electronically using tablets, with spot checks for quality control conducted by field leadership
N/A
N/A
African Population and Health Research Center
The user of the data acknowledges that the original collector of the data, the authorized distributor of the data, and the relevant funding agency bear no responsibility for use of the data or for interpretations or inferences based upon such uses.
Clinical validation data.NSDstat
133
33
Nesstar 200801
African Population and Health Research Center
N/A
Version 1.0
N/A
Household survey data.NSDstat
1274
111
Nesstar 200801
African Population and Health Research Center
N/A
Version 1.0
N/A
Clinical Validation
Household Survey
Socio- Demographics
Socio - Economic factors
Medical History
Parkinson’s disease screening tool
PDQ-39 Questionnaire
HEALTH-RELATED QUALITY OF LIFE – HRQOL
LUBBEN SOCIAL NETWORK SCALE – 6 Item Version
ANTHROPOMERY MEASURE
Background
Medical History
Screening Questions
Medication
1.5 Age (years)
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Background
Age (years)
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
60
97
71.526
8.41
The participant age in years
"1.5 Age (years)"
1.5b Gender
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Background
Gender
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
The gender of the participant (wherther male or female )
1
a) Male
55
2
b) Female
78
"1.5b Gender"
1.6 Marital status
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Background
Marital Status
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
The marriage status of the participant, wherther they are co habiting, married, divorced , widowed or never married
1
a) Married
84
2
b) Divorced/separated
4
3
c) Widowed
34
4
d) Never Married
11
"1.6 Marital status"
1.7 Level of education
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Background
Level of education
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
The highest level of education achieved by the participant
1
a) Primary
55
2
b) Secondary
45
3
c) Tertiary
16
4
d) No formal education
17
"1.7 Level of education"
1.8 What is your ethnic background?
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Background
What is your ethnic background?
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
The particular tribal background of the participant
1
a) Kikuyu
89
2
b) Luhyia
4
3
c) Luo
5
4
d) Kamba
18
5
e) Kalenjin
2
6
f) Kisii
6
7
g) Taita
0
96
96) Others (Specify)
9
"1.8 What is your ethnic background?"
Specify Other
Older people aged 60+ years attending neurology clinics and/or Adult clinics
What is your ethnic background?
Specify other
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
9
0
Any additional tribal background not listed amongst the survey options
Embu
1
Maasai
1
Meru
5
Miji kenda
1
Sudanese
1
"Specify Other"
1.9 What is your religious background?
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Background
What is your religious background?
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
The religious background of the participant
1
a) Hindu
0
2
b) Christian
130
3
c) Muslim
3
4
d) Traditional
0
96
96) Others (specify)
0
"1.9 What is your religious background?"
Specify Other
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Background
Specify Other
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
0
0
Any additional religiousl background not listed amongst the survey options
"Specify Other"
2.0.2 Hypertension
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Has a doctor ever told you that you have the following conditions ? Or have you been taking any medication , vitamins, or supplements for the following conditions ?
Hypertension
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
If the partipant has ever been diagnosed with high blood pressure, or using any medication, vitamins or supplements in regards to hypertension
0
No
29
1
Yes
104
"2.0.2 Hypertension"
2.0.2. Diabetes
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Has a doctor ever told you that you have the following conditions ? Or have you been taking any medication , vitamins, or supplements for the following conditions ?
Diabetes
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
If the partipant has ever been diagnosed with diabetes, or using any medication, vitamins or supplements in regards to diabetes
0
No
107
1
Yes
26
"2.0.2. Diabetes"
2.0.3. Cardiovascular diseases
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Has a doctor ever told you that you have the following conditions ? Or have you been taking any medication , vitamins, or supplements for the following conditions ?
Cardiovascular diseases
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
If the partipant has ever been diagnosed with heart diseases, or using any medication, vitamins or supplements in regards to heart diseases
0
No
77
1
Yes
56
"2.0.3. Cardiovascular diseases"
2.0.4. Stroke
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Has a doctor ever told you that you have the following conditions ? Or have you been taking any medication , vitamins, or supplements for the following conditions ?
Stroke
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
If the partipant has ever been diagnosed with stroke condition , or using any medication, vitamins or supplements in regards to stroke conditions
0
No
107
1
Yes
26
"2.0.4. Stroke"
2.0.5. Cancers
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Has a doctor ever told you that you have the following conditions ? Or have you been taking any medication , vitamins, or supplements for the following conditions ?
Cancers
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
If the partipant has ever been diagnosed with any group of cancer, or using any medication, vitamins or supplements in regards to cancer illness
0
No
123
1
Yes
10
"2.0.5. Cancers"
2.0.6. Kidney diseases
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Has a doctor ever told you that you have the following conditions ? Or have you been taking any medication , vitamins, or supplements for the following conditions ?
Kidney diseases
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
0
No
121
1
Yes
12
"2.0.6. Kidney diseases"
2.0.7. Chronic respiratory
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Has a doctor ever told you that you have the following conditions ? Or have you been taking any medication , vitamins, or supplements for the following conditions ?
Chronic respiratory
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
If the partipant has ever been diagnosed with lung diseases or breathing problems, or using any medication, vitamins or supplements in regards to lung diseases or breathing problems
0
No
114
1
Yes
19
"2.0.7. Chronic respiratory"
2.0.8. Asthma
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Has a doctor ever told you that you have the following conditions ? Or have you been taking any medication , vitamins, or supplements for the following conditions ?
Asthma
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
If the partipant has ever been diagnosed with asthma condition, or using any medication, vitamins or supplements in regards to asthma condition
0
No
121
1
Yes
12
"2.0.8. Asthma"
2.0.9. Insomnia
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Has a doctor ever told you that you have the following conditions ? Or have you been taking any medication , vitamins, or supplements for the following conditions ?
Insomnia
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
If the partipant has ever been diagnosed with insomnia, or using any medication, vitamins or supplements in regards to insomnia
0
No
99
1
Yes
34
"2.0.9. Insomnia"
2.0.10. Arthritis/ Rheumatism
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Has a doctor ever told you that you have the following conditions ? Or have you been taking any medication , vitamins, or supplements for the following conditions ?
Arthritis/Rheumatism
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
If the partipant has ever been diagnosed with arthritis conditions, or using any medication, vitamins or supplements in regards to arthritis
0
No
81
1
Yes
52
"2.0.10. Arthritis/ Rheumatism"
2.0.11. Ulcer
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Has a doctor ever told you that you have the following conditions ? Or have you been taking any medication , vitamins, or supplements for the following conditions ?
Ulcer
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
If the partipant has ever been diagnosed with any form of ulcers, or using any medication, vitamins or supplements in regards to having ulcers conditions
0
No
98
1
Yes
35
"2.0.11. Ulcer"
2.0.12. Dementia
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Has a doctor ever told you that you have the following conditions ? Or have you been taking any medication , vitamins, or supplements for the following conditions ?
Dementia
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
132
1
If the partipant has ever been diagnosed with dementia, or using any medication, vitamins or supplements in regards to having dementia
0
No
100
1
Yes
32
Sysmiss
1
"2.0.12. Dementia"
2.0.13. Epilepsy
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Has a doctor ever told you that you have the following conditions ? Or have you been taking any medication , vitamins, or supplements for the following conditions ?
Epilepsy
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
132
1
If the partipant has ever been diagnosed with epilepsy, or using any medication, vitamins or supplements in regards to having epilepsy
0
No
130
1
Yes
2
Sysmiss
1
"2.0.13. Epilepsy"
2.0.14.Psychosis
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Has a doctor ever told you that you have the following conditions ? Or have you been taking any medication , vitamins, or supplements for the following conditions ?
Psychosis
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
132
1
If the partipant has ever been diagnosed with psychosis, or using any medication, vitamins or supplements in regards to experiencing psychosis
0
No
125
1
Yes
7
Sysmiss
1
"2.0.14.Psychosis"
2.1.1 Have you ever noticed stiffness in your legs?
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Screening questions
Have you ever noticed stiffness in your legs?
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
Stiffness in their joints especially while trying to move their legs or while walking
1
No
54
2
Yes
79
3
Don't know
0
"2.1.1 Have you ever noticed stiffness in your legs?"
2.1.2. Have you ever had tremors of your head, arm, or legs that lasted more tha
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Screening questions
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
Experience of tremors ( extreme shaking) in their head, arm or legs that has lasted more than a day
1
No
96
2
Yes
36
3
Don't know
1
"2.1.2. Have you ever had tremors of your head, arm, or legs that lasted more than 1 day?"
2.1.3. Do you have trouble buttoning buttons or dressing?
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Screening questions
Do you have trouble buttoning buttons or dressing?
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
Any challenge buttoning their buttons or generally dresssing
1
No
102
2
Yes
31
3
Don't know
0
"2.1.3. Do you have trouble buttoning buttons or dressing?"
2.1.4. Have you or others noted that you do not swing one arm when you walk?
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Screening questions
Have you or others noted that you do not swing one arm when you walk?
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
1
No
103
2
Yes
30
3
Don't know
0
"2.1.4. Have you or others noted that you do not swing one arm when you walk?"
2.1.5. Do your feet seem to get stuck to the floor when walking or turning?
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Screening questions
Do your feet seem to get stuck to the floor when walking or turning?
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
Feet seeming to get stuck (feeing of their feet being heavy) when walking or turning
1
No
82
2
Yes
51
3
Don't know
0
"2.1.5. Do your feet seem to get stuck to the floor when walking or turning?"
2.1.6. Have you become slower in your usual daily activities?
Older people aged 60+ years attending neurology clinics and/or Adult clinics
Screening questions
Have you become slower in your usual daily activities?
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
Becoming slower in their normal day to day activities
1
No
41
2
Yes
92
3
Don't know
0
"2.1.6. Have you become slower in your usual daily activities?"
2.1.7 . Are you taking any medication?
Older people aged 60+ years attending neurology clinics and/or Adult clinics
N/A
Are you taking any medication ?
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
133
0
If the participant is taking any medicines
1
No
20
2
Yes
113
3
Don't know
0
"2.1.7 . Are you taking any medication?"
2.1.8. If yes which ones?
Older people aged 60+ years attending neurology clinics and/or Adult clinics
N/A
If yes which ones ?
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
93
Aclosara sp,zofen100mg
1
Aldactone
1
Aldactone ,Lorstan,diuside,enapril carca,artovaflavin
1
Aldactone,
1
Aldactone, Empigiazine
1
Almodine
1
Amolodipine 5od, nifedipine 20 mg,lasix 40mg od
1
Amolodipone,
1
Anisol, omeprozole,Meloxicam, trialopris, dompesidove, mgoH/AloH Antacid
1
Apixaban, Lasix, carbosen sodium, duloxetine, cardnerve, misard, carvedelol, febuxostat, Ezetemibe, Avastin, hydrolaxine, emphaghiflozin,foralin, tiova
1
Ascorde
1
Ascoril cough syrup
1
Asprin, insulin,morphine,empegit,epinnone,telmisatan 40,vasteral mr, induric sr, imdur, pregabalin
1
Atacanal,clopidogrel,symbicort
1
Autodiponelez
1
Avastatin, cardevilol
1
Benzehex
1
Betason,mixtaaid,omeprazole,Benium
1
Can't remember the name
1
1
Cardinol,
1
Carditan
1
Carditan,glucomet, avastatin
1
Cardoz 25,cilneed,losartan, metaphomine
1
Carvedilo, amlodipine
1
Carvediol aldactone, telmi_H, amlodipine,lefra,aivtal
1
1
Carvedrol,dicard ,furesemide ,treviamet epnone,diamicron,empiget
1
Check the image
1
Chlorpromazine,
1
DTAv Furosemide Advant
1
Dicard, Empaflo spironolactone
1
Diutor 10,harteze,co_ micardis,xarelto, hydralazine, spironolactone, theophylline,
1
Doesn't know
1
Empiget, netformin,carvediol,enalapril,furosemide,emaglifozin
1
Enapril
1
Enapril,glucomet,
1
Enpiget, vidole,furosemide,rivarox,ascard,aldactone,empaglifozin
1
Evisoft ,tacrolimus, peitel
1
Gastroplus
1
Gastroplus,luntus
1
Gatroplus
1
Gaviscon,esopride,deflazacort, actor,torasemide,
1
Gaviscou,pantoprazole,furosemide,losartan,symiacort,
1
Gutfree
1
Hixtaro, furocide,linaslipin,carriday,atrostate
1
Hydrazine
1
Lasix, Aldactone, carvedilol, dicard, Empaglifloxin, digoxin, Atorrastaton
1
Leucoderm,peitel
1
Levodopa
1
Lipiget
1
Losacard
1
Losaptan,
1
Losartan potassium, frusemide
1
Losartan,olanzipine, atorastatin,olanzipine,myospaz
1
Losartanh, cardevilo,Amrodipine, pre gablin artificial tears, betapyn, covetimove,relax gel,inhaler
1
Magnesium bisglycinate
1
Meloxicam
1
Mentor,aldactone, hartaze,sildenafil
1
Metformin hydrochloride Acetylicylic Losartan potassium and hydrochloride Atrovastatin calcium Glimepiride Hydralazine
1
Mixtard insulin,glifempa, Amrodipine, deprex
1
Mixtred,
1
Nefedipine,pregabalin, pfizer
1
Nifedine,
1
Nifedine,cetrizine,celecobix,esomeprazole,methotrexate, folic acid
1
Pergalin, coveram, flexor, napro, cox B-100,Gabaz, omicap-20,myonac, mycogab
1
Progabalin,
1
Rivaroxabau ,Amlozaar
1
Rosartan, amlodophine, foralin, spriva
1
Sinemet
1
Sinemet ,Tegretol, Epilim Lasix Artovastan ostecare fustum
1
Sinemet, empa-q, hemsamic, concor, dicard, Aldactone, frusemide
1
Symbicort
1
Tamsulosin,esomeprazole,gaviscon,prostaflo
1
Took a picture
15
Took an image
1
Vaslerasa MR,empire,ascad ,ciarevech,nogluc
1
metcos,benzihexol, sinemet
1
presatan,
1
"2.1.8. If yes which ones?"
2.1.8. If yes take a picture of the medicines/precscription (FI NOTE)
Older people aged 60+ years attending neurology clinics and/or Adult clinics
N/A
If yes take a picture of the medicines/precscription (FI NOTE)
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
71
Additional pictures of the medicines or medicine name or medical sheet that the participant is taking
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1
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1
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"2.1.8. If yes take a picture of the medicines/precscription (FI NOTE)"
2.1.9. Do you know what these medicines are for?
Older people aged 60+ years attending neurology clinics and/or Adult clinics
N/A
Do you know what these medicine are for?
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
113
20
If the participant is aware or has the understanding of the treatment purpose of the recomended medicines
1
No
2
2
Yes
110
3
Don't know
1
Sysmiss
20
"2.1.9. Do you know what these medicines are for?"
2.1.10. What are these medicines for
Older people aged 60+ years attending neurology clinics and/or Adult clinics
N/A
What are these medicines for?
N/A
N/A
Older people aged 60+ years attending neurology clinics and/or Adult clinics
109
0
The particular purpose of the recomendend medicines as understood by the participant
Acidity,diabetes
1
Arthritis
1
Arthritis, diabetes,high blood pressure ,cardiovascular
1
Arthritist
1
Atomic dermatitis
1
Bones,pain reliever, skin,cardiovascular disease, Parkinson,
1
Cardiovascular disease
4
Cardiovascular disease, Parkinson
1
Cardiovascular disease, hypertension
1
Cardiovascular disease,hypertension
1
Chronic,heartfailure
1
Controlling colestral, regulating blood flow
1
Coughing and hypertension
1
Coughing,heartburn
1
Diabeters Hypertension
1
Diabetes ,hypertension
1
Diabetes ,hypertension and depression
1
Diabetes, High blood Pressure, pain killers ,ointment for body massage,heartburn
1
Diabetes, Hpertension,
1
Diabetes, asthma
1
Diabetes, hypertension, reducing fat, back pain
1
Diabetes, hypertension,cardiovascular disease
1
Diabetes,high blood pressure,cholesterol
1
FOR ONE PARALYSED ARM, AND DEMENTIA
1
1
For controlling parkison disease
1
For diabetes
1
For diabetes and blood pressure
1
1
For parkison disease
1
For skin ,and chemotherapy for blood
1
HEART DISEASE
1
Heart problem,diabetes,kidney disease
1
Heartproblems and kidneys
1
Hiccups
1
High blood pressure
7
High blood pressure, diabetes, kidney disease, asthma,eyes,heart condition,
1
High blood pressure, diabetes, stroke,
1
High blood pressure, joint pains,
1
High blood pressure, stroke,
1
High blood pressure, ulcers,back sores
1
High blood pressure,arthritis
1
High blood pressure,cardiovascular disease
1
High blood pressure,diabetes
1
High blood pressure,diabetes,cholesterol, heart condition
1
High blood pressure,nerves
1
High blood pressure,throat problem
1
High blood pressure,water repainting in body,ulcers,
1
Highblood pressure
1
Hypertension
7
Hypertension diabetes,gas
1
Hypertension, athritis ,respiratory,headache, eyes,ulcers
1
Hypertension, blood thinner(anticlot)
1
Hypertension, cancer
1
Hypertension, cardiovascular disease
4
1
Hypertension, control of rapid movement of arms,tremors of the limbs
1
Hypertension, nerves,bones
1
Inhaler,high blood pressure,heartburn
1
Kidney diseases,cardiovascular disease, diabetes, ulcers
1
Kidney failure,heart failure
1
Kidney problem,high blood pressure,water retentions in body
1
Knee pain
1
Nerves, hypertension, calcium
1
Nerves,kidney,cardiovascular disease, respiratory disease,
1
Pain killers
1
Pain killers and other assist in stomache
1
Painkillers for back ache and muscle relaxer
1
Presssures Nerves Tremors For ulcers And for reducing the pain
1
Pressure And for parkinson
1
Pressure Heart conditions
1
Pressure, For diabetes Nerves
1
Pressure,diebetes
1
Reduce frequent urination,high blood pressure,getting rid of water retention in body
1
Scleroderma,tougphness of skin,lungs
1
1
Skin disease,
1
Stomach upset,gastritis,high blood pressure
1
Stomachache, increase blood in the body
1
Stroke
1
Stroke,hypertension
1
Supplements, hypertension,medicine to prevent body from shaking,medicine to reduce fat from the body
1
To get rid of Water rention in body,heart condition,
1
To maintain parkison disease
1
To reduce the pressure of parkinson
1
To stop tremors
1
Tremors
1
Tremors ,insomnia
1
Ulcers
1
Ulcers,cancer
1
Ulcers,nerves, hypertension
1
"2.1.10. What are these medicines for"
1.4 C. Location
Older people aged 60+ years or care givers aged 18+ years old
Socio-Demographics
Location
N/A
N/A
Older people aged 60+ years
1274
0
The study location of the paritcipant , wherther in Korogocho or Viwandani
korogocho
682
viwandani
592
"1.4 C. Location"
1.4 D. Village
Older people aged 60+ years or care givers aged 18+ years old
Socio-Demographics
village
N/A
N/A
Older people aged 60+ years
1274
0
The particular Village in the study area of the participant
DONHOLM
74
GITATHURU
114
GROGAN A
55
GROGAN B
69
HIGHRIDGE
185
JAMAICA
74
KINGSTONE
48
KISUMU NDOGO
59
KOROGOCHO A
95
KOROGOCHO B
73
LUNGA LUNGA CENTRE
108
MILIMANI
72
NYAYO
32
PARADISE A
17
PARADISE B
31
PARADISE C
19
RIVERSIDE
31
SINAI ORIGINAL
70
SINAI RELI
26
UCHUMI
22
"1.4 D. Village"
Older people aged 60+ years or care givers aged 18+ years old
Socio-Demographics
New participant
N/A
N/A
Older people aged 60+ years
388
886
If the participant is a new resident in the study village and is not listed in the screening tool
0
No
56
1
Yes
332
Sysmiss
886
1.5 Household ID
Older people aged 60+ years or care givers aged 18+ years old
Socio-Demographics
Household ID
N/A
N/A
Older people aged 60+ years
941
0
The particular household ID based on the APHRC's demographic surveillance system
G00100400100
1
G00102100300
1
G00104800100
1
G00105800200
1
G00106300600
1
G00106301201
1
G00107500400
1
G00108400100
1
G00202500100
1
G00202600100
1
G00202900100
1
G00203400200
1
G00204600200
1
G00300900100
1
G00303100100
1
G00303600200
1
G00303800100
1
G00304800100
1
G00305700300
1
G00306400200
1
G00400100100
1
G00400300300
1
G00402500200
1
G00402700100
1
G00406900200
1
G00407300100
1
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1
G00410600300
1
G00411800100
1
G00412000100
1
G00412800100
1
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1
G00413700100
1
G00415700100
1
G00419500100
1
G00424100200
1
G00425300200
1
G00425600100
1
G00601900100
1
G00602500100
1
G00603500100
1
G00603800300
1
G00800500200
1
G00801300100
1
G00801800100
1
G00803800100
1
G00805300300
1
G00900500200
1
G01102300200
1
G01200400200
1
G01201200100
1
G01202100100
1
G01202700100
1
G01204200200
1
G01205500200
1
G01206000200
1
G01206000400
1
G01206600100
1
G01301000100
1
G01301300200
1
G01302200100
1
G01303300500
1
G01303400100
1
G01400900300
1
G01403600300
1
G01500300100
1
G01503000400
1
G01503200100
1
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1
G01503700100
1
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1
G01602500100
1
G01603000100
1
G01603400300
1
G01700900100
1
G01703400100
1
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1
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1
G01706500300
1
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1
G01802100100
1
G01802200100
1
G01803000100
1
G01900300100
1
G01900400100
1
G01901400300
1
G02000300300
1
G02000600100
1
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1
G02002800300
1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
G02408400100
1
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1
G02409300100
1
G02409400100
1
G02501800300
1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
G02613600200
1
G02614200100
1
G02614200300
1
G02701500200
1
G02703600100
1
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1
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1
G02706900100
1
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1
G02800600300
1
G02801700300
1
G02900100200
1
G02901800200
1
G02901800400
1
G02903300100
1
G02904600200
1
G02904700100
1
G03002200200
1
G03002300100
1
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1
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1
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1
G03004900200
1
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1
G03005100200
1
G03006200200
1
G03101800200
1
G03102800100
1
G03206000100
1
G03206200100
1
G03206300100
1
G03206500100
1
G03206700100
1
G03301200100
1
V00705900600
1
V00706700300
1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
V00802100500
1
V00803000200
1
V00803100300
1
V00903300400
1
V00904600600
1
V00907700300
1
V00908000200
1
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1
V00910200100
1
V00910200600
1
V01007300300
1
V01007500200
1
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1
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1
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1
V01013100100
1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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"1.5 Household ID"
RoomID_New
Older people aged 60+ years or care givers aged 18+ years old
Socio-Demographics
RoomID new
N/A
N/A
Older people aged 60+ years
379
0
The particular Room ID based on the APHRC's demographic surveillance system
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
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1
R428107
1
R439679
1
R439906
1
R440467
1
R450655
1
R452561
1
R454153
1
R454319
1
R457061
1
R457686
1
R459289
1
R461127
1
R464006
1
R464291
1
R464836
1
R465221
1
R465621
1
R471178
1
R476663
1
R478311
1
R478371
1
R481795
1
R483410
1
R486823
1
R488909
1
R490205
1
R492875
1
R496753
1
R497283
1
R497442
1
R501621
1
R502797
1
R516420
1
R519984
1
R521488
1
R521635
1
R522093
1
R528264
1
R529079
1
R532033
1
R534126
1
R535134
1
R538037
1
R540768
1
R542075
1
R550995
1
R553176
1
R555372
1
R556076
1
R556687
1
R558184
1
R563810
1
R563923
1
R572993
1
R576397
1
R583945
1
R588787
1
R589349
1
R593436
1
R593704
1
R597269
1
R602465
1
R609357
1
R611776
1
R614119
1
R615593
1
R617760
1
R617768
1
R619307
1
R620062
1
R622785
1
R623279
1
R623513
1
R628220
1
R634401
1
R634556
1
R636587
1
R637487
1
R637952
1
R638959
1
R640364
1
R643080
1
R645233
1
R647533
1
R657159
1
R659456
1
R661220
1
R662968
1
R669264
1
R669464
1
R670447
1
R680311
1
R685016
1
R686272
1
R687693
1
R692142
1
R692607
1
R694860
1
R700812
1
R701121
1
R705491
1
R707507
1
R707529
1
R708999
1
R713807
1
R713823
1
R717003
1
R720569
1
R720853
1
R723175
1
R723556
1
R726535
1
R727848
1
R728076
1
R728583
1
R729860
1
R730631
1
R732842
1
R734033
1
R735339
1
R739554
1
R739635
1
R739724
1
R741090
1
R749546
1
R750214
1
R752011
1
R752996
1
R753864
1
R755815
1
R762351
1
R766768
1
R767781
1
R770488
1
R771574
1
R773189
1
R779690
1
R784669
1
R790171
1
R794495
1
R796186
1
R798577
1
R801251
1
R811008
1
R811774
1
R816462
1
R817605
1
R823269
1
R826664
1
R828692
1
R829049
1
R831609
1
R834901
1
R846550
1
R846680
1
R848015
1
R848383
1
R856282
1
R861908
1
R862258
1
R862826
1
R863733
1
R865743
1
R868417
1
R872022
1
R872087
1
R872115
1
R872586
1
R875912
1
R876723
1
R877413
1
R877686
1
R880925
1
R887678
1
R891074
1
R891732
1
R892789
1
R898293
1
R899690
1
R904569
1
R904677
1
R908084
1
R914425
1
R917950
1
R918173
1
R919535
1
R919686
1
R921077
1
R926725
1
R932169
1
R932787
1
R933278
1
R933887
1
R935703
1
R936296
1
R940995
1
R942171
1
R942326
1
R942908
1
R946424
1
R949994
1
R950669
1
R959442
1
R959718
1
R960487
1
R964439
1
R966232
1
R967354
1
R970310
1
R973758
1
R975162
1
R975479
1
R975775
1
R975895
1
R975995
1
R979535
1
R981777
1
R985308
1
R989769
1
R993630
1
R996008
1
1.8 a. How long have you lived in this area?
Older people aged 60+ years or care givers aged 18+ years old
Socio-Demographics
How long have you lived in this area?
N/A
N/A
Older people aged 60+ years
1274
0
The length of period the participant has lived within the study location
1
Under 1 year
5
2
Over 1 Year
1269
"1.8 a. How long have you lived in this area?"
1.8a.1 If > 1 year, how many years
Older people aged 60+ years or care givers aged 18+ years old
Socio-Demographics
N/A
N/A
Older people aged 60+ years
1269
5
1
91
30.385
13.424
The number of years spent in this area, if the participant has lived for more than 1 year in the study location
"1.8a.1 If > 1 year, how many years"
1.8a.2 If <1 year, how many months?
Older people aged 60+ years or care givers aged 18+ years old
Socio-Demographics
if over 1 year, how many years ?
N/A
N/A
Older people aged 60+ years
5
1269
The number of months spent in this area, if the participant has not lived for more than a year in this study location
1
1
3
2
4
1
9
1
Sysmiss
1269
"1.8a.2 If <1 year, how many months?"
2.0 Age (years) prefill from screening ${age}
Older people aged 60+ years or care givers aged 18+ years old
Socio-Demographics
Age (years)
N/A
N/A
Older people aged 60+ years
1274
0
60
105
67.052
7.153
The age of the participant in years as prefilled from the screening tool
"2.0 Age (years) prefill from screening "
2.1 Gender?
Older people aged 60+ years or care givers aged 18+ years old
Socio-Demographics
Gender
N/A
N/A
Older people aged 60+ years
1274
0
The particular sex of the participant, as to wherther Male Or Female
1
a) Male
755
2
b) Female
519
"2.1 Gender?"
2.2 Marital status
Older people aged 60+ years or care givers aged 18+ years old
Socio-Demographics
Marital status
N/A
N/A
Older people aged 60+ years
1274
0
The marriage status of the participant
1
a) Married
768
2
b) Divorced/separated
139
3
c) Widowed
336
4
d) Never Married
31
"2.2 Marital status"
Specify Other
Older people aged 60+ years or care givers aged 18+ years old
Marital status
Specify other
N/A
N/A
Older people aged 60+ years
0
1274
Any addittional form of marriage of the participant that is not provided amongst the survey options
Sysmiss
1274
"Specify Other"
2.3 Level of education
Older people aged 60+ years or care givers aged 18+ years old
Socio-Demographics
Level of education
N/A
N/A
Older people aged 60+ years
1274
0
The highest level of education attained by the participant
1
a) Primary
700
2
b) Secondary
305
3
c) Tertiary
11
4
d) No formal education
258
"2.3 Level of education"
2.4 What is your ethnic background?
Older people aged 60+ years or care givers aged 18+ years old
Socio-Demographics
What is your ethnic background
N/A
N/A
Older people aged 60+ years
1274
0
The tribal background of the participant
1
a) Kikuyu
539
2
b) Luhya
147
3
c) Luo
110
4
d) Kamba
241
5
e) Kalenjin
7
6
f) Kisii
45
7
g) Taita
6
8
h) Somali
147
96
96) Others (Specify)
32
"2.4 What is your ethnic background?"
Specify Other
Older people aged 60+ years or care givers aged 18+ years old
What is your ethnic background
Specify other
N/A
N/A
Older people aged 60+ years
32
0
Any addittional tribal background of the participant which are not mentioned amongst the survey options
DRC
1
Embu
8
Embu-Mbeere
1
Giriama
1
Kongolise
1
Luganda
1
Maasai
2
Masai
2
Mbeele
1
Mbeere
1
Mduruma
1
Meru
7
Munyu
2
Sabaot
1
Said he cannot disclose his tribe because of security purposes
1
Tanzania
1
"Specify Other"
2.5 What is your religious background?
Older people aged 60+ years or care givers aged 18+ years old
Socio-Demographics
What is your religious background ?
N/A
N/A
Older people aged 60+ years
1274
0
The religious affiliation of the participant
1
a) Hindu
0
2
b) Christian
1105
3
c) Muslim
165
4
d) Traditional
3
96
96) Others (specify)
1
"2.5 What is your religious background?"
Specify Other
Older people aged 60+ years or care givers aged 18+ years old
What is your religious background
Specify other
N/A
N/A
Older people aged 60+ years
1
0
Any other additional afiliations provided by the respondent that is not within the survey options
Pagan
1
"Specify Other"
2.6.1 Do you live with anyone else aside from your child/children? (Living arran
Older people aged 60+ years or care givers aged 18+ years old
Socio-Economic factors
Do you live with anyone else aside from your child/children? (Living arrangement)
N/A
N/A
Older people aged 60+ years
1274
0
if there is any other persorn who eat and sleeps under the same roof as them,who is not their child/children
0
No
842
1
Yes
432
"2.6.1 Do you live with anyone else aside from your child/children? (Living arrangement)"
2.6.2. What is the size of your household?
Older people aged 60+ years or care givers aged 18+ years old
Socio-Economic factors
What is the size of your household ?
N/A
N/A
Older people aged 60+ years
1274
0
1
22
3.093
2.527
The total number of persorn they live, including their children,family and relatives
"2.6.2. What is the size of your household?"
2.6.3. Are you currently employed or actively working?
Older people aged 60+ years or care givers aged 18+ years old
Socio-Economic factors
Are you currently employed or actively working?
N/A
N/A
Older people aged 60+ years
1274
0
The participant's regular source of income
1
Public servant
11
2
Private formal sector
96
3
Subsistence farmer
9
4
Large scale farmer
1
5
Self-employed/small business
399
6
Self-employed/large business
2
7
Homemaker (housewife/husband)
2
8
Student
1
9
Retired
27
10
Unemployed
343
11
Casual Laborer
365
96
96) Others( specify)
18
"2.6.3. Are you currently employed or actively working?"
Specify Other
Older people aged 60+ years or care givers aged 18+ years old
Socio-Economic factors
speciify other
N/A
N/A
Older people aged 60+ years
18
0
Any other form of income not listed amongst the survey options
Bodaboda
1
Carpenter
1
Catering
1
Community mentor
1
Community security
1
Community volunteer
1
Driver
1
He is a pastor
1
Hustler
1
Jua kali
1
Landlord
1
Pastor
2
Recycling petroleum
1
Security guard
1
Security personnel
1
Washing clothes
1
Watch man
1
"Specify Other"
Family
Older people aged 60+ years or care givers aged 18+ years old
Who supports you financially?
Family
N/A
N/A
Older people aged 60+ years
1274
0
Participant receiving financial assistance from their family member or relatives
0
No
796
1
Yes
478
Friends
Older people aged 60+ years or care givers aged 18+ years old
Who supports you financially?
friends
N/A
N/A
Older people aged 60+ years
1274
0
Participant receives financial assistance from friends
0
No
1228
1
Yes
46
Government
Older people aged 60+ years or care givers aged 18+ years old
Who supports you financially?
Government
N/A
N/A
Older people aged 60+ years
1274
0
Participant receives financial assistance from the government
0
No
1180
1
Yes
94
Self-support
Older people aged 60+ years or care givers aged 18+ years old
Who supports you financially?
Self support
N/A
N/A
Older people aged 60+ years
1274
0
The participant support themselves finacially and receives no assistance from anyone
0
No
421
1
Yes
853
Other specify
Older people aged 60+ years or care givers aged 18+ years old
Who supports you financially?
Others (specify)
N/A
N/A
Older people aged 60+ years
1274
0
If there is any source of financial assistance
0
No
1270
1
Yes
4
Specify Other
Older people aged 60+ years or care givers aged 18+ years old
Other specify
Specify other
N/A
N/A
Older people aged 60+ years
4
0
List of the additional sources of financial assistance as listed by the participant
Church
3
From NGOs like Red cross.
1
"Specify Other"
2.6.5. How satisfied are you with support/remittances from your children?
Older people aged 60+ years or care givers aged 18+ years old
Socio-Economic factors
How satisfied are you with support/remittances from your children?
N/A
N/A
Older people aged 60+ years
1274
0
Level of satisfaction with the financial support they receive from their children, If any.
1
a) Very dissatisfied
40
2
b) Dissatisfied
186
3
c) Indifferent
205
4
d) Satisfied
339
5
e) Very satisfied
102
6
Not Applicatble
402
"2.6.5. How satisfied are you with support/remittances from your children?"
2.6.6. Do you have an active National Health Insurance Fund (NHIF) card?
Older people aged 60+ years or care givers aged 18+ years old
Socio-Economic factors
Do you have an active National Health Insurance Fund (NHIF) card?
N/A
N/A
Older people aged 60+ years
1274
0
If participant is covered by government social health insuarance scheme
0
No
982
1
Yes
292
"2.6.6. Do you have an active National Health Insurance Fund (NHIF) card?"
2.6.7. Here is a picture of a ladder. Please think of this ladder as a represent
Older people aged 60+ years or care givers aged 18+ years old
Here is a picture of a ladder. Please think of this ladder as a representation of the socioeconomic standing of people in your community. At the top of the ladder are those who are best off; they have the most money, the most education, and the most respected jobs. At the bottom are people who have the least money, the least education, and the least jobs.
Where would you place yourself on this ladder?
N/A
N/A
Older people aged 60+ years
1274
0
The participant ratings in the social-economic ladder, where at the top of ladder (number 1) are those who are financially well off and the bottom of the ladder (number 10) are the worst, who are financially nt capable
1
1
6
2
2
0
3
3
3
4
4
5
5
5
47
6
6
65
7
7
146
8
8
303
9
9
317
10
10
382
"2.6.7. Here is a picture of a ladder. Please think of this ladder as a representation of the socioeconomic standing of people in your community. At the top of the ladder are those who are best off; they have the most money, the most education, and the most respected jobs. At the bottom are people who have the least money, the least education, and the least jobs. Where would you place yourself on this ladder?"
2.8.1 Have you ever noticed stiffness in your legs?
Older people aged 60+ years or care givers aged 18+ years old
Parkinson's disease screening questions
Have you ever noticed stiffness in your legs?
N/A
N/A
Older people aged 60+ years
1274
0
Stiffness in their joints especially while trying to move their legs or while walking
1
No
816
2
Yes
456
3
Don't Know
2
"2.8.1 Have you ever noticed stiffness in your legs?"
2.8.2 Have you ever had tremors of your head, arm, or legs that lasted more than
Older people aged 60+ years or care givers aged 18+ years old
Parkinson's disease screening questions
Have you ever had tremors of your head, arm, or legs that lasted more than 1 day?
N/A
N/A
Older people aged 60+ years
1274
0
Experience of tremors ( extreme shaking) in their head, arm or legs that has lasted more than a day
1
No
1182
2
Yes
91
3
Dont Know
1
"2.8.2 Have you ever had tremors of your head, arm, or legs that lasted more than 1 day?"
2.8.3 Do you have trouble buttoning buttons or dressing?
Older people aged 60+ years or care givers aged 18+ years old
Parkinson's disease screening questions
Do you have trouble buttoning buttons or dressing?
N/A
N/A
Older people aged 60+ years
1274
0
Any challenge buttoning their buttons or generally dresssing
1
No
1232
2
Yes
41
3
Dont Know
1
"2.8.3 Do you have trouble buttoning buttons or dressing?"
2.8.4 Have you or others noted that you do not swing one arm when you walk?
Older people aged 60+ years or care givers aged 18+ years old
Parkinson's disease screening questions
Have you or others noted that you do not swing one arm when you walk?
N/A
N/A
Older people aged 60+ years
1274
0
1
No
1212
2
Yes
52
3
Dont Know
10
"2.8.4 Have you or others noted that you do not swing one arm when you walk?"
2.8.5 Do your feet seem to get stuck to the floor when walking or turning?
Older people aged 60+ years or care givers aged 18+ years old
Parkinson's disease screening questions
Do your feet seem to get stuck to the floor when walking or turning?
N/A
N/A
Older people aged 60+ years
1274
0
Feet seeming to get stuck (feeing of their feet being heavy) when walking or turning
1
No
1112
2
Yes
154
3
Dont Know
8
"2.8.5 Do your feet seem to get stuck to the floor when walking or turning?"
2.8.6 Have you become slower in your usual daily activities?
Older people aged 60+ years or care givers aged 18+ years old
Parkinson's disease screening questions
Have you become slower in your usual daily activities?
N/A
N/A
Older people aged 60+ years
1274
0
Becoming slower in their normal day to day activities
1
No
759
2
Yes
509
3
Dont Know
6
"2.8.6 Have you become slower in your usual daily activities?"
2.8.1 Hypertension
Older people aged 60+ years or care givers aged 18+ years old
Has a doctor ever told you that you have the following conditions? Or Have you been taking any medications, vitamins, or supplements for the following conditions?
Hypertension
N/A
N/A
Older people aged 60+ years
1274
0
If the partipant has ever been diagnosed with high blood pressure, or using any medication, vitamins or supplements in regards to hypertension
0
No
785
1
Yes
489
"2.8.1 Hypertension"
2.8.2. Diabetes
Older people aged 60+ years or care givers aged 18+ years old
Has a doctor ever told you that you have the following conditions? Or Have you been taking any medications, vitamins, or supplements for the following conditions?
Diabetes
N/A
N/A
Older people aged 60+ years
1274
0
If the partipant has ever been diagnosed with diabetes, or using any medication, vitamins or supplements in regards to diabetes
0
No
1137
1
Yes
137
"2.8.2. Diabetes"
2.8.3. Cardiovascular diseases
Older people aged 60+ years or care givers aged 18+ years old
Has a doctor ever told you that you have the following conditions? Or Have you been taking any medications, vitamins, or supplements for the following conditions?
Cardiovascular diseases
N/A
N/A
Older people aged 60+ years
1274
0
If the partipant has ever been diagnosed with heart diseases, or using any medication, vitamins or supplements in regards to heart diseases
0
No
1242
1
Yes
32
"2.8.3. Cardiovascular diseases"
2.8.4. Stroke
Older people aged 60+ years or care givers aged 18+ years old
Has a doctor ever told you that you have the following conditions? Or Have you been taking any medications, vitamins, or supplements for the following conditions?
Stroke
N/A
N/A
Older people aged 60+ years
1274
0
If the partipant has ever been diagnosed with stroke condition , or using any medication, vitamins or supplements in regards to stroke conditions
0
No
1256
1
Yes
18
"2.8.4. Stroke"
2.8.5.Cancers
Older people aged 60+ years or care givers aged 18+ years old
Has a doctor ever told you that you have the following conditions? Or Have you been taking any medications, vitamins, or supplements for the following conditions?
Cancers
N/A
N/A
Older people aged 60+ years
1274
0
If the partipant has ever been diagnosed with any group of cancer, or using any medication, vitamins or supplements in regards to cancer illness
0
No
1265
1
Yes
9
"2.8.5.Cancers"
2.8.6. Kidney diseases
Older people aged 60+ years or care givers aged 18+ years old
Has a doctor ever told you that you have the following conditions? Or Have you been taking any medications, vitamins, or supplements for the following conditions?
Kidney diseases
N/A
N/A
Older people aged 60+ years
1274
0
0
No
1244
1
Yes
30
"2.8.6. Kidney diseases"
2.8.7. Chronic respiratory
Older people aged 60+ years or care givers aged 18+ years old
Has a doctor ever told you that you have the following conditions? Or Have you been taking any medications, vitamins, or supplements for the following conditions?
Chronic respiratory
N/A
N/A
Older people aged 60+ years
1274
0
If the partipant has ever been diagnosed with lung diseases or breathing problems, or using any medication, vitamins or supplements in regards to lung diseases or breathing problems
0
No
1191
1
Yes
83
"2.8.7. Chronic respiratory"
2.8.8. Asthma
Older people aged 60+ years or care givers aged 18+ years old
Has a doctor ever told you that you have the following conditions? Or Have you been taking any medications, vitamins, or supplements for the following conditions?
Asthma
N/A
N/A
Older people aged 60+ years
1274
0
If the partipant has ever been diagnosed with asthma condition, or using any medication, vitamins or supplements in regards to asthma condition
0
No
1222
1
Yes
52
"2.8.8. Asthma"
2.8.9. Insomnia
Older people aged 60+ years or care givers aged 18+ years old
Has a doctor ever told you that you have the following conditions? Or Have you been taking any medications, vitamins, or supplements for the following conditions?
Insomnia
N/A
N/A
Older people aged 60+ years
1274
0
If the partipant has ever been diagnosed with insomnia, or using any medication, vitamins or supplements in regards to insomnia
0
No
1153
1
Yes
121
"2.8.9. Insomnia"
2.8.10.Arthritis/ Rheumatism
Older people aged 60+ years or care givers aged 18+ years old
Has a doctor ever told you that you have the following conditions? Or Have you been taking any medications, vitamins, or supplements for the following conditions?
Arhtritis/Rheumatism
N/A
N/A
Older people aged 60+ years
1274
0
If the partipant has ever been diagnosed with arthritis conditions, or using any medication, vitamins or supplements in regards to arthritis
0
No
1001
1
Yes
273
"2.8.10.Arthritis/ Rheumatism"
2.8.11. Ulcer
Older people aged 60+ years or care givers aged 18+ years old
Has a doctor ever told you that you have the following conditions? Or Have you been taking any medications, vitamins, or supplements for the following conditions?
Ulcer
N/A
N/A
Older people aged 60+ years
1274
0
If the partipant has ever been diagnosed with any form of ulcers, or using any medication, vitamins or supplements in regards to having ulcers conditions
0
No
1027
1
Yes
247
"2.8.11. Ulcer"
2.8.12. Dementia
Older people aged 60+ years or care givers aged 18+ years old
Has a doctor ever told you that you have the following conditions? Or Have you been taking any medications, vitamins, or supplements for the following conditions?
Dementia
N/A
N/A
Older people aged 60+ years
1274
0
If the partipant has ever been diagnosed with dementia, or using any medication, vitamins or supplements in regards to having dementia
0
No
1045
1
Yes
229
"2.8.12. Dementia"
2.8.13. Epilepsy
Older people aged 60+ years or care givers aged 18+ years old
Has a doctor ever told you that you have the following conditions? Or Have you been taking any medications, vitamins, or supplements for the following conditions?
Epilepsy
N/A
N/A
Older people aged 60+ years
1274
0
If the partipant has ever been diagnosed with epilepsy, or using any medication, vitamins or supplements in regards to having epilepsy
0
No
1269
1
Yes
5
"2.8.13. Epilepsy"
2.8.14.Psychosis
Older people aged 60+ years or care givers aged 18+ years old
Has a doctor ever told you that you have the following conditions? Or Have you been taking any medications, vitamins, or supplements for the following conditions?
Psychosis
N/A
N/A
Older people aged 60+ years
1274
0
If the partipant has ever been diagnosed with psychosis, or using any medication, vitamins or supplements in regards to experiencing psychosis
0
No
1263
1
Yes
11
"2.8.14.Psychosis"
2.8.15. Parkinson's
Older people aged 60+ years or care givers aged 18+ years old
Has a doctor ever told you that you have the following conditions? Or Have you been taking any medications, vitamins, or supplements for the following conditions?
Parkinson's
N/A
N/A
Older people aged 60+ years
1274
0
If the partipant has ever been diagnosed with Parkinson's condition, or using any medication, vitamins or supplements in regards to experiencing Parkinson
0
No
1270
1
Yes
4
"2.8.15. Parkinson's"
2.8.16. Other Specify
Older people aged 60+ years or care givers aged 18+ years old
Has a doctor ever told you that you have the following conditions? Or Have you been taking any medications, vitamins, or supplements for the following conditions?
Other Specify
N/A
N/A
Older people aged 60+ years
1274
0
Any other medical condition that is not listed in the survey options
0
No
1223
1
Yes
51
"2.8.16. Other Specify"
Specify Other
Older people aged 60+ years or care givers aged 18+ years old
Other Specify
Specify other
N/A
N/A
Older people aged 60+ years
51
0
Addittional medication not listed amongst the survey options
AIDS
2
Amoeba
1
Anaemia
1
Arvs
2
Blood clotting
1
Chronic diarrhoea
1
Eye condition leading to partial blindness
1
Eye condition on one eye leading to blindness
1
Eye problem
1
Eye related problem on treatment
1
Eyecondition leading to blindnes
1
Eyesight problem
1
Frequent nose bleeding
1
Goiter
1
HIV
1
HIV/AIDS
1
He lost sight for one eye
1
Hearing impairment on treatment
1
Hearing problem
1
Hernia
1
Hiv
2
Hiv positive
4
Hiv/Aids
4
Joint pains
1
Left eye condition leading to blindness,swelling on upper belly, left kidney in severe pain
1
Loss of sight
1
Low eyesight and hearing problems
1
Malaria
2
Menegitis
1
Nerves
1
Nervos
1
Pneumonia
1
Prostate disease
1
She had obaration on the abdomen
1
Short eye sight
1
Skin disease
2
Stomach ulcers
1
The participant was scanned and found to have internal bleeding
1
Tooth ache
1
Toothache
1
"Specify Other"
2.9.1 Had difficulty doing leisure activities which you would like to do?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Had difficulty doing leisure activities which you would like to do?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
Experiencing a challenge to perform activities for pleasure or relaxations that the participant would desire due to suffering from Parkinson's disease
1
1. Never
1
2
2. Occasionally
1
3
3. Sometimes
1
4
4. Often
1
5
5. Always - Cannot do at all
0
Sysmiss
1270
"2.9.1 Had difficulty doing leisure activities which you would like to do?"
2.9.2 Had difficulty looking after your home, e.g., DIY, housework, cooking?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Had difficulty looking after your home, e.g., DIY, housework, cooking?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
Experiencing a challenge of performing their regular day to day activities due to having parkinson's disease
1
1. Never
0
2
2. Occasionally
2
3
3. Sometimes
0
4
4. Often
2
5
5. Always - Cannot do at all
0
Sysmiss
1270
"2.9.2 Had difficulty looking after your home, e.g., DIY, housework, cooking?"
2.9.3 Had difficulty carrying bags of shopping?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Had difficulty carrying bags of shopping?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
experiencing problems in lifting and carrying bagd due to the conditions of parkisons
1
1. Never
0
2
2. Occasionally
0
3
3. Sometimes
2
4
4. Often
1
5
5. Always - Cannot do at all
1
Sysmiss
1270
"2.9.3 Had difficulty carrying bags of shopping?"
2.9.4 Had problems walking half a mile(1km) ?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Had problems walking half a mile(1km) ?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
experiencing a challenge to walk regularly for a distance of 1 kilometer due to having parkinson disease
1
1. Never
1
2
2. Occasionally
0
3
3. Sometimes
2
4
4. Often
0
5
5. Always - Cannot do at all
1
Sysmiss
1270
"2.9.4 Had problems walking half a mile(1km) ?"
2.9.5 Had problems walking 100 yards (90 meters)?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Had problems walking 100 yards (90 meters)?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
experiencing a challenge to walk regularly for steps of 100 yards due to having parkinson disease
1
1. Never
1
2
2. Occasionally
1
3
3. Sometimes
1
4
4. Often
0
5
5. Always - Cannot do at all
1
Sysmiss
1270
"2.9.5 Had problems walking 100 yards (90 meters)?"
2.9.6 Had problems getting around the house as easily as you would like?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Had problems getting around the house as easily as you would like?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
Finding it hard to move around the house compared to before diagnosis due to having parkinsons disease
1
1. Never
1
2
2. Occasionally
0
3
3. Sometimes
1
4
4. Often
1
5
5. Always - Cannot do at all
1
Sysmiss
1270
"2.9.6 Had problems getting around the house as easily as you would like?"
2.9.7 Had difficulty getting around in public?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Had difficulty getting around in public?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
experiencing a problem with walking in public due to their parkinson condition
1
1. Never
0
2
2. Occasionally
0
3
3. Sometimes
2
4
4. Often
1
5
5. Always - Cannot do at all
1
Sysmiss
1270
"2.9.7 Had difficulty getting around in public?"
2.9.8 Needed someone else to accompany you when you went out?
Older people aged 60+ years diagnosed with parkinson or care giver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Needed someone else to accompany you when you went out?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
needing assistance or a caregiver to accompany them when going out in public
1
1. Never
0
2
2. Occasionally
0
3
3. Sometimes
2
4
4. Often
1
5
5. Always - Cannot do at all
1
Sysmiss
1270
"2.9.8 Needed someone else to accompany you when you went out?"
2.9.9 Felt frightened or worried about falling over in public?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Felt frightened or worried about falling over in public?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
having anxiety and fear of falling in public due to the parkinson conditions
1
1. Never
0
2
2. Occasionally
0
3
3. Sometimes
1
4
4. Often
1
5
5. Always - Cannot do at all
2
Sysmiss
1270
"2.9.9 Felt frightened or worried about falling over in public?"
2.9.10 Been confined to the house more than you would like?
Older people aged 60+ years diagnosed with parkinson or care giver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Been confined to the house more than you would like?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
1
1. Never
0
2
2. Occasionally
0
3
3. Sometimes
2
4
4. Often
1
5
5. Always - Cannot do at all
1
Sysmiss
1270
"2.9.10 Been confined to the house more than you would like?"
2.9.11 Had difficulty washing yourself?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Had difficulty washing yourself
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
experiencing a challenge in bathing or cleaning themselves
1
1. Never
0
2
2. Occasionally
2
3
3. Sometimes
1
4
4. Often
0
5
5. Always - Cannot do at all
1
Sysmiss
1270
"2.9.11 Had difficulty washing yourself?"
2.9.12 Had difficulty dressing yourself?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Had difficulty dressing yourself?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
The participant having troubles of wearing clothes
1
1. Never
2
2
2. Occasionally
0
3
3. Sometimes
0
4
4. Often
1
5
5. Always - Cannot do at all
1
Sysmiss
1270
"2.9.12 Had difficulty dressing yourself?"
2.9.13 Had problems doing up your shoelaces?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Had problems doing up your shoelaces?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
If the participant finds it hard to tie their shoe laces due to their conditions
1
1. Never
2
2
2. Occasionally
0
3
3. Sometimes
0
4
4. Often
1
5
5. Always - Cannot do at all
1
Sysmiss
1270
"2.9.13 Had problems doing up your shoelaces?"
2.9.14 Had problems writing clearly?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Had problems writing clearly?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
Experiencing problem when writing due to having parkindons
1
1. Never
2
2
2. Occasionally
0
3
3. Sometimes
0
4
4. Often
0
5
5. Always - Cannot do at all
2
Sysmiss
1270
"2.9.14 Had problems writing clearly?"
2.9.15 Had difficulty cutting up your food?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Had difficulty cutting up your food?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
1
1. Never
2
2
2. Occasionally
0
3
3. Sometimes
0
4
4. Often
0
5
5. Always - Cannot do at all
2
Sysmiss
1270
"2.9.15 Had difficulty cutting up your food?"
2.9.16 Had difficulty holding a drink without spilling it?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Had difficulty holding a drink without spilling it?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
Finding hard to hold a drinks steadily due to their condition
1
1. Never
2
2
2. Occasionally
0
3
3. Sometimes
0
4
4. Often
0
5
5. Always - Cannot do at all
2
Sysmiss
1270
"2.9.16 Had difficulty holding a drink without spilling it?"
2.9.17 Felt depressed?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Felt depressed
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
feeling deepressed dueto their medical condition of having parkinson
1
1. Never
0
2
2. Occasionally
0
3
3. Sometimes
2
4
4. Often
2
5
5. Always - Cannot do at all
0
Sysmiss
1270
"2.9.17 Felt depressed?"
2.9.18 Felt isolated and lonely?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Felt isolated and lonely
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
feeling lonely and isolalted due to their medical conditions
1
1. Never
1
2
2. Occasionally
0
3
3. Sometimes
2
4
4. Often
1
5
5. Always - Cannot do at all
0
Sysmiss
1270
"2.9.18 Felt isolated and lonely?"
2.9.19 Felt weepy or tearful?
v
Felt weepy or tearful
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
Being weepy or tearful due to their medical condiotions of having parkinson's
1
1. Never
0
2
2. Occasionally
1
3
3. Sometimes
1
4
4. Often
1
5
5. Always - Cannot do at all
1
Sysmiss
1270
"2.9.19 Felt weepy or tearful?"
2.9.20 Felt angry or bitter?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Felt angry or bitter
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
feeling irritated and annoyed due to having parkinsons
1
1. Never
0
2
2. Occasionally
1
3
3. Sometimes
0
4
4. Often
2
5
5. Always - Cannot do at all
1
Sysmiss
1270
"2.9.20 Felt angry or bitter?"
2.9.21 Felt anxious?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Felt anxious
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
feeling nervous and worried due the condtios of having parkinsons
1
1. Never
0
2
2. Occasionally
1
3
3. Sometimes
2
4
4. Often
1
5
5. Always - Cannot do at all
0
Sysmiss
1270
"2.9.21 Felt anxious?"
2.9.22 Felt worried about your future?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Felt worried about your future
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
feeling bothered about their future and upcoming events due to having parkinson disease
1
1. Never
0
2
2. Occasionally
1
3
3. Sometimes
1
4
4. Often
2
5
5. Always - Cannot do at all
0
Sysmiss
1270
"2.9.22 Felt worried about your future?"
2.9.23 Felt you had to conceal your Parkinson's diagnosis from people?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Felt you had to conceal your Parkinson's diagnosis from people?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
feeling of having to hide paarkinson's diagnosis , due to fear of being stigmatised
1
1. Never
0
2
2. Occasionally
1
3
3. Sometimes
1
4
4. Often
1
5
5. Always - Cannot do at all
1
Sysmiss
1270
"2.9.23 Felt you had to conceal your Parkinson's diagnosis from people?"
2.9.24 Avoided situations that involve eating or drinking in public?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Avoided situations that involve eating or drinking in public?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
1
1. Never
2
2
2. Occasionally
1
3
3. Sometimes
0
4
4. Often
1
5
5. Always - Cannot do at all
0
Sysmiss
1270
"2.9.24 Avoided situations that involve eating or drinking in public?"
2.9.25 Felt embarrassed in public due to having Parkinson's disease?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Felt embarrassed in public due to having Parkinson's disease?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
feeling ashamed of being in public due to suffering from parkinsons
1
1. Never
1
2
2. Occasionally
0
3
3. Sometimes
1
4
4. Often
2
5
5. Always - Cannot do at all
0
Sysmiss
1270
"2.9.25 Felt embarrassed in public due to having Parkinson's disease?"
2.9.26 Felt worried by other people's reactions to you?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Felt worried by other people's reactions to you?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
Feeling bothered about other people's reaction due to your parkinson condition
1
1. Never
1
2
2. Occasionally
0
3
3. Sometimes
1
4
4. Often
2
5
5. Always - Cannot do at all
0
Sysmiss
1270
"2.9.26 Felt worried by other people's reactions to you?"
2.9.27 Had problems with your close personal relationships?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Felt worried by other people's reactions to you?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
Having a challenge to be able to maintain or to form close personal relationship due to having parkinson's disease
1
1. Never
2
2
2. Occasionally
0
3
3. Sometimes
1
4
4. Often
1
5
5. Always - Cannot do at all
0
Sysmiss
1270
"2.9.27 Had problems with your close personal relationships?"
2.9.28 Lacked support in the ways you need from your spouse or partner? (If you
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Lacked support in the ways you need from your spouse or partner?
If you do not have a spouse or partner tick here
N/A
Older people aged 60+ years diagnosed with parkinson
2
1272
receiving not enough support from their spouses due to having parkinson's disease
1
1. Never
1
2
2. Occasionally
0
3
3. Sometimes
1
4
4. Often
0
5
5. Always - Cannot do at all
0
Sysmiss
1272
"2.9.28 Lacked support in the ways you need from your spouse or partner? (If you do not have a spouse or partner tick here)"
2.9.29 Lacked support in the ways you need from your family or close friends?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Lacked support in the ways you need from your family or close friends?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
receiving little needed support from their family member and close friends due to having parkinson disease
1
1. Never
1
2
2. Occasionally
0
3
3. Sometimes
0
4
4. Often
3
5
5. Always - Cannot do at all
0
Sysmiss
1270
"2.9.29 Lacked support in the ways you need from your family or close friends?"
2.9.30 Unexpectedly fallen asleep during the day?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Unexpectedly fallen asleep during the day?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
surprisingly (unplanningly) felt asleep during the day due to having parkison condition
1
1. Never
0
2
2. Occasionally
1
3
3. Sometimes
1
4
4. Often
1
5
5. Always - Cannot do at all
1
Sysmiss
1270
"2.9.30 Unexpectedly fallen asleep during the day?"
2.9.31 Had problems with your concentration, e.g., when reading or watching TV?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Had problems with your concentration, e.g., when reading or watching TV?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
lacking proper concetration on activities due to having parkinsons disease
1
1. Never
1
2
2. Occasionally
1
3
3. Sometimes
1
4
4. Often
1
5
5. Always - Cannot do at all
0
Sysmiss
1270
"2.9.31 Had problems with your concentration, e.g., when reading or watching TV?"
2.9.32 Felt your memory was bad?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Felt your memory was bad?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
feeling of struggling to remeber things due tosuffering from parkinsons
1
1. Never
1
2
2. Occasionally
0
3
3. Sometimes
1
4
4. Often
1
5
5. Always - Cannot do at all
1
Sysmiss
1270
"2.9.32 Felt your memory was bad?"
2.9.33 Had distressing dreams or hallucinations?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Had distressing dreams or hallucinations?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
experiencing hallucinations and bad dreams due to having parkinson disease
1
1. Never
0
2
2. Occasionally
0
3
3. Sometimes
2
4
4. Often
1
5
5. Always - Cannot do at all
1
Sysmiss
1270
"2.9.33 Had distressing dreams or hallucinations?"
2.9.34 Had difficulty with your speech?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Had difficulty with your speech?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
finding it hard to speak normal sentenses due to having parkinson's
1
1. Never
1
2
2. Occasionally
1
3
3. Sometimes
1
4
4. Often
0
5
5. Always - Cannot do at all
1
Sysmiss
1270
"2.9.34 Had difficulty with your speech?"
2.9.35 Felt unable to communicate with people properly?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Felt unable to communicate with people properly?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
Having trouble in making normal and proper conversation with people
1
1. Never
0
2
2. Occasionally
1
3
3. Sometimes
3
4
4. Often
0
5
5. Always - Cannot do at all
0
Sysmiss
1270
"2.9.35 Felt unable to communicate with people properly?"
2.9.36 Felt ignored by people?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Felt ignored by people?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
Having the feeling of being deliberately not being listened to due to their parkinsons conditon
1
1. Never
1
2
2. Occasionally
1
3
3. Sometimes
0
4
4. Often
2
5
5. Always - Cannot do at all
0
Sysmiss
1270
"2.9.36 Felt ignored by people?"
2.9.37 Had painful muscle cramps or spasms?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Had painful muscle cramps or spasms?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
experiencing painfull involuntary muscle contractions
1
1. Never
0
2
2. Occasionally
0
3
3. Sometimes
1
4
4. Often
2
5
5. Always - Cannot do at all
1
Sysmiss
1270
"2.9.37 Had painful muscle cramps or spasms?"
2.9.38 Had aches and pains in your joints or body?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Had aches and pains in your joints or body?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
experiencing pain and aching in the joints due to having parkinsons
1
1. Never
0
2
2. Occasionally
0
3
3. Sometimes
1
4
4. Often
1
5
5. Always - Cannot do at all
2
Sysmiss
1270
"2.9.38 Had aches and pains in your joints or body?"
2.9.39 Felt unpleasantly hot or cold?
Older people aged 60+ years diagnosed with parkinson or caregiver aged 18+ years
Due to having Parkinson's disease, how often during the last month have you...
Felt unpleasantly hot or cold?
N/A
N/A
Older people aged 60+ years diagnosed with parkinson
4
1270
Unusal feeling of extreme body tempratures due to having parkinson's disease
1
1. Never
1
2
2. Occasionally
0
3
3. Sometimes
1
4
4. Often
1
5
5. Always - Cannot do at all
1
Sysmiss
1270
"2.9.39 Felt unpleasantly hot or cold?"
3.0.1 Mobility
Older people aged 60+ years or care givers aged 18+ years old
Five items referring to current problems
Mobility
N/A
N/A
Older people aged 60+ years
1274
0
if the participant experiences any challenge in movement while performing difrent activities
1
1. No problems
924
2
2. Moderate problems
274
3
3. Extreme problems
76
"3.0.1 Mobility"
3.0.2 Self-care
Older people aged 60+ years or care givers aged 18+ years old
Five items referring to current problems
Self - care
N/A
N/A
Older people aged 60+ years
1274
0
If the participant experiences any challenges in maintaining their wellbeing
1
1. No problems
1098
2
2. Moderate problems
136
3
3. Extreme problems
40
"3.0.2 Self-care"
3.0.3 Usual activities
Older people aged 60+ years or care givers aged 18+ years old
Five items referring to current problems
Usual activities
N/A
N/A
V
1274
0
If the participant experiences any challenges in performance their usual day to day activities
1
1. No problems
951
2
2. Moderate problems
261
3
3. Extreme problems
62
"3.0.3 Usual activities"
3.0.4 Pain/discomfort
Five items referring to current problems
Pain/ Discomfort
N/A
N/A
Older people aged 60+ years
1274
0
If the participant experiences any pain or discomfort in their bodies
1
1. No problems
699
2
2. Moderate problems
443
3
3. Extreme problems
132
"3.0.4 Pain/discomfort"
3.0.5 Restlessness
Older people aged 60+ years or care givers aged 18+ years old
Five items referring to current problems
Restlessness
N/A
N/A
Older people aged 60+ years
1274
0
If the participant experiences any feeling of uneasiness or feeling worried
1
1. No problems
866
2
2. Moderate problems
349
3
3. Extreme problems
59
"3.0.5 Restlessness"
3.1.1 How many relatives do you see or hear from at least once a month?
Older people aged 60+ years or care givers aged 18+ years old
FAMILY: Considering the people to whom you are related
How many relatives do you see or hear from at least once a month?
N/A
N/A
Older people aged 60+ years
1274
0
The number of relatives regularly visiting or checking up on the participant's wellbeing
0
None
131
1
1
89
2
2
116
3
3 - 4
286
4
5 - 8
390
5
9 and above
262
"3.1.1 How many relatives do you see or hear from at least once a month?"
3.1.2 How many relatives do you feel close to, and can call on them for help?
Older people aged 60+ years or care givers aged 18+ years old
FAMILY: Considering the people to whom you are related
How many relatives do you feel close to, and can call on them for help?
N/A
N/A
Older people aged 60+ years
1274
0
The number of relatives that the participant has a close and free relationship, who they feel comfortable and at ease to ask for help
0
None
256
1
1
216
2
2
256
3
3 - 4
327
4
5 - 8
169
5
9 and above
50
"3.1.2 How many relatives do you feel close to, and can call on them for help?"
3.1.3 How many relatives do you feel at ease with whom you can talk about privat
Older people aged 60+ years or care givers aged 18+ years old
FAMILY: Considering the people to whom you are related
How many relatives do you feel at ease with whom you can talk about private
N/A
N/A
Older people aged 60+ years
1274
0
The number of relatives with whom they are able to share with intimate matters affecting the participant
0
None
287
1
1
442
2
2
282
3
3 - 4
189
4
5 - 8
58
5
9 and above
16
"3.1.3 How many relatives do you feel at ease with whom you can talk about private matters?"
3.1.5 How many of your friends do you see or hear from at least once a month?
Older people aged 60+ years or care givers aged 18+ years old
FRIENDS: Considering all of your friends, including those who live in your neighborhood
How many of your friends do you see or hear from at least once a month?
N/A
N/A
Older people aged 60+ years
1274
0
The number of friends regularly visiting or checking up on the participant's wellbeing
0
None
191
1
1
60
2
2
107
3
3 - 4
197
4
5 - 8
191
5
9 and above
528
"3.1.5 How many of your friends do you see or hear from at least once a month?"
3.1.6 How many friends do you feel close to, and can call on them for help?
Older people aged 60+ years or care givers aged 18+ years old
FRIENDS: Considering all of your friends, including those who live in your neighborhood
How many friends do you feel close to, and can call on them for help?
Older people aged 60+ years or care givers aged 18+ years old
Older people aged 60+ years or care givers aged 18+ years old
Older people aged 60+ years
1274
0
The number of friends that the participant has a close and free relationship, who they feel comfortable and at ease to ask for help
0
None
542
1
1
143
2
2
191
3
3 - 4
212
4
5 - 8
81
5
9 and above
105
"3.1.6 How many friends do you feel close to, and can call on them for help?"
3.1.7 How many friends do you feel at ease with whom you can talk about private
Older people aged 60+ years or care givers aged 18+ years old
FRIENDS: Considering all of your friends, including those who live in your neighborhood
How many friends do you feel at ease with whom you can talk about private
N/A
N/A
Older people aged 60+ years
1274
0
The number of friends with whom they are able to share with intimate matters affecting the participant
0
None
743
1
1
194
2
2
185
3
3 - 4
104
4
5 - 8
25
5
9 and above
23
"3.1.7 How many friends do you feel at ease with whom you can talk about private matters?"
a) Measurement 1: a1: [systolic_1]
Older people aged 60+ years or care givers aged 18+ years old
ANTHROPOMERY MEASURE
Measurement 1: [pull_systolic_1]
N/A
N/A
Older people aged 60+ years
1274
0
0
260
146.082
27.215
The first systolic blood pressure reading
"a) Measurement 1: a1: [systolic_1]"
b) Measurement 1: a2: [diastolic_1]
Older people aged 60+ years or care givers aged 18+ years old
ANTHROPOMERY MEASURE
b) Measurement 1: a2: [diastolic_1]
N/A
N/A
Older people aged 60+ years
1274
0
0
106000
173.432
2967.271
The first diastolic blood pressure reading
"b) Measurement 1: a2: [diastolic_1]"
a) Measurement 2: b1: [systolic_2]
Older people aged 60+ years or care givers aged 18+ years old
ANTHROPOMERY MEASURE
Measurement 2: [pull_systolic_2]/[
N/A
N/A
Older people aged 60+ years
1274
0
0
1846
144.928
54.652
The second systolic blood pressure reading
"a) Measurement 2: b1: [systolic_2]"
b) Measurement 2: ab2: [diastolic_2]
Older people aged 60+ years or care givers aged 18+ years old
ANTHROPOMERY MEASURE
b) Measurement 2: a2: [diastolic_1]
N/A
N/A
Older people aged 60+ years
1274
0
0
144
88.896
14.161
The second diastolic blood pressure reading
"b) Measurement 2: ab2: [diastolic_2]"
a) Measurement 1: c1: [systolic_3]
Older people aged 60+ years or care givers aged 18+ years old
ANTHROPOMERY MEASURE
Measurement 3 : [pull_systolic_3]/[
N/A
N/A
Older people aged 60+ years
1274
0
0
257
141.951
26.216
The third systolic blood pressure reading
"a) Measurement 1: c1: [systolic_3]"
b) Measurement 1: c2: [diastolic_3]
Older people aged 60+ years or care givers aged 18+ years old
ANTHROPOMERY MEASURE
b) Measurement 3: a2: [diastolic_1]
N/A
N/A
Older people aged 60+ years
1274
0
0
139
88.108
14.168
The third diastolic blood pressure reading
"b) Measurement 1: c2: [diastolic_3]"
Older people aged 60+ years or care givers aged 18+ years old
ANTHROPOMERY MEASURE
Average systolic measurement
N/A
N/A
Older people aged 60+ years
1274
0
0
713
144.32
30.582
The avarage systolic blood presure readings
Older people aged 60+ years or care givers aged 18+ years old
ANTHROPOMERY MEASURE
Average dystolic measurement
N/A
N/A
Older people aged 60+ years
1274
0
0
35400.668
116.812
989.409
The average diastolic blood pressure readings