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    Home / Central Data Catalog / HEALTH_AND_WELL-BEING / DDI-KEN-APHRC-EPINA-2023-V1.0 / variable [F2]
Health_and_Well-Being

Evaluation of a Mobile Messaging Service in Improving Adherence (Text and /or Graphic/Audio) with Ensured Supply of Anti-seizure Medications in People with Epilepsy in Kilifi and Nairobi, Kenya, EPInA

Kenya, 2023 - 2024
Health and Well-Being (HaW)
Dr Symon Kariuki
Last modified November 13, 2024 Page views 20448 Documentation in PDF Metadata DDI/XML JSON
  • Study description
  • Documentation
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  • WHOQOL
  • WHODAS Adult
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  • Screening tool
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CSV JSON

(scr_comment)

Data file: Screening tool

Overview

vald 620
Interval discrete

Questions and instructions

Literal question
Record questions and comments raised by the respondents
Categories
Value Category
Cannot comprehend well.
Cbh _Test
Comes from Machakos county
Comes from Muranga and will go outside the country from July to October
Comes from Muranga not able to be part of the Research study
Comes from far
Daughter is always accompanying her
Declined to participate
Declined to take part,she says she has mastered her time of taking medication and also it's difficult to get permission from work.
EPN104041501
EPn pid 103010501
Fgzzguvui
From Muranga county
Ghb
Gyg
Has problem with compression
He is concerned about lack of ASM in public facilities and whether the organization can lobby, Create awareness among employees
He is from Nakuru
He is from isiolo county
He is in a boarding secondary school
He lives in the periphery of Nairobi County ( Ngong)
He stays in the periphery of Nairobi county (Ngong)
He stays with a friend whom he uses his phone
How long before research findings are publucly shared.
If she run out of drugs and out of cash where can she get the medication
Last time she used ASM was in December
Last time the child was on medications was in december reason being his medical card got burnt and the clinic doesn't know the drugs he was on
Last took ASM in December 2022.
Leaves in Narok and is the son to the participant who also leaves in Narok.
Lives In Nyandarau.
Lives in Gatanga, out of Nairobi
Lives in Limuru.
Lives in Muranga
Never been diagnosed. Not been on Medication for one month.
None
Not been on ASM for more than one month.
Not beneficial to him he in able to remember to take medication
Not eligible
Not on treatment, no symptoms ,not confirmed to be epileptic.
Not sure about shipping her blood sample will give feedback about it by next appointment after thinking about it,for now it's a no.
Out of Nairobi
PID-EPN 105086602
Parent refused blood sample to be taken since it will not benefit her if she is not getting results.
Participant comes from Taita Taveta
Participant had comprehension issues.
Participant has queries on her condition,it was not very clear to her its epilepsy because she has schizorphrenia and bipolar too.Referred to a focal person in the facility after the interviews.
Participant in boarding school
Participant is not available for follow up sessions
Participant is not eligible because she is from Makueni county.
Participant lives in Eldoret
Participant lives in Wajir
Participant refused due to lack of personal benefits
Participant took Tegretol last in January 2023,consented and linked to a facility for follow up and access to available medication.
Participants stays in Nyeri
Patient is resident Nakuru
Pick drugs from Kawe clinic Karen health center.
Questions being asked with mother because participant is not mentally able to
Refusal
Refused to participate since research does not have any individual benefit.
Requests we share research findings with him
Research not beneficial
Resident of muranga
Respondent never diagnosed with epilepsy
Said study does not add any value to him
Screened out by UBACC
She asked if the follow up clinic same questions will be asked
She asked if the same questions would be asked in follow up visits
She is a resident of murang'a County
She is on hypertensive medicatin
Stays in Mombasa
Te respondent has a number but the mother monitors it ,the mother would like individualized toxicology report
The caregiver has a restless child because of epilepsy
The child is very restless and can't stay for 3 hours for the interview
The drugs are very expensive which sometimes affects his adherence
The drugs she had carried to school got exhausted
The girl does not leave with the mother,she resides in moyale with the grandmother and is in school there.
The mother died after giving birth to the participant whe she was 13years.Grandmother is the gurdain.
The participant claims she is not a Person Living with Epilepsy.
The participant could not comprehend study details,we tried to reach out to the brother to comeas caregiver and he is not available his work is tight.The sister in law just had a baby and is not aware of so much about the participant.
The participant denys he has epilepsy
The participant did not consent citing being forced by his mother
The participant has been transfered to huruma Lions for her follow clinics and so she would like her research study follow up clinic to be there.
The participant has not been on ASM for over one year.The mother stopped him from the medication because it brought more convulsions than when he was not on them.During facility screening the neurologist indicated that he is not on medication a
The participant is 6 months old and the caregiver claims that it's not a confirmed case of epilepsy,was taken to MRI and she had a head injury that is bringing about convulsions she is being treated with.
The participant is in boarding secondary school
The participant is not interested.
The participant is not on ASM.
The participant requested we share the findings of blood test with him
The participant took the medication but the side effects were worse, so she stopped the medication
The participants is not on ASM but she is on hypertensive medication
The patient is in a boarding school
The respondent requests to be notified of the blood results
Understood the consent fully
Used ASM once in December. Currentlynot on ASM.
Was to be contacted for EEG.
What hapoens if one gets reminders to take medications and tgey do not have thise medications due to lack of means to secure them.
Whether blood sample is a must.
Whether he can access treatment while at the facility.
Would like individualized report
Would like individualized results of toxicology report
Would like individualized toxicology report
Would like to get his toxicology report
Would like to know individualized report on her daughter's toxicology
Would like to know personal toxicology results after research study
Would like to know toxicology report
Would like to know toxicology report for all follow up clinics
Would like to receive his toxicology results
Would like to receive the individual toxicology report on email if possible.
Would like toget toxicology results
Would like toxicology report
Would like toxicology results
Warning: these figures indicate the number of cases found in the data file. They cannot be interpreted as summary statistics of the population of interest.
Question pretext
N/A
Question post text
N/A
Interviewer instructions
N/A

Description

Text
Captured questions and comments raised by the respondents
Universe
Epilepsy patients
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