Interviewer instructions
Please listen to the following story describing a person with a particular type of epilepsy and keep it in your mind while responding to the rest of the Epilepsy Belief Scale. This story is about Bahati. Bahati has epilepsy and has one seizure per week. 1-2 days before the seizure, his behaviour changes. He/she may become naughty, sometimes may isolate him/herself or may look sleepy and wants to sleep. His/her eyes may become red and may also complain of headache. Just before the fit, he/she may feel her/his heart has skipped a beat and feels mixed up (a feeling you may have when you suddenly see a scaring and unexpected thing- e.g., a dead body). He/she then falls and loses consciousness, starts jerking in all 4 limbs with eyes either rolling upwards, deviating to the sides or wide open, bites the tongue and foams for about 3 minutes then he/she urinates, and the jerking movements stop. He remains unconscious for a couple of minutes then wakes up drowsy and goes to sleep. This is about your belief. Only you know what you believe, so if you tell us how you feel, all your answers will be correct.
