Parkinson’s Disease Diagnosis, Perceptions, Awareness, and Care in Kenya, PACKs WP1 Prevalence of PD

KENYA, 2024
Health and Well-Being (HaW)

Dr Gershim Asikii, MD PhD, Dickens Samuel Aduda MPH, PhD

Data file: Household survey data

HouseHold survey Questionnaire. The Household questionnaires was translated into kiswahili and the participants were interviewed using the english or kiswahili version, according to their language prederence. The data collection was conducted by trained and experienced personnel. The questionnaire collected data on Socio-Demographics,Socio-Economic factors,Medical History,Parkinson's disease screening tool,PDQ-39 questionnaire,health-related quality of life -HRQOL,lubben social network scale- 6 item version and anthropometry measures.
Cases	1274
Variables	111

Variables

q1p4c

1.4 C. Location

q1p4d

newparticipant

q1p5

1.5 Household ID

roomid_new

q1p8yearsnote

1.8 a. How long have you lived in this area?

q1p8years

1.8a.1 If > 1 year, how many years

q1p8months

1.8a.2 If <1 year, how many months?

q2p0

2.0 Age (years) prefill from screening ${age}

q2p1

q2p2

2.2 Marital status

q2p3other

q2p3

2.3 Level of education

q2p4

2.4 What is your ethnic background?

q2p4other

q2p5

2.5 What is your religious background?

q2p5other

q2p6p1

2.6.1 Do you live with anyone else aside from your child/children? (Living arran

q2p6p2

2.6.2. What is the size of your household?

q2p6p3

2.6.3. Are you currently employed or actively working?

q2p6p3other

q2p6p4_1

q2p6p4_2

q2p6p4_3

q2p6p4_4

q2p6p4_96

q2p6p4other

q2p6p5

2.6.5. How satisfied are you with support/remittances from your children?

q2p6p6

2.6.6. Do you have an active National Health Insurance Fund (NHIF) card?

q2p6p7

2.6.7. Here is a picture of a ladder. Please think of this ladder as a represent

q2p7p1

2.8.1 Have you ever noticed stiffness in your legs?

q2p7p2

2.8.2 Have you ever had tremors of your head, arm, or legs that lasted more than

q2p7p3

2.8.3 Do you have trouble buttoning buttons or dressing?

q2p7p4

2.8.4 Have you or others noted that you do not swing one arm when you walk?

q2p7p5

2.8.5 Do your feet seem to get stuck to the floor when walking or turning?

q2p7p6

2.8.6 Have you become slower in your usual daily activities?

q2p8p1

2.8.1 Hypertension

q2p8p2

2.8.2. Diabetes

q2p8p3

2.8.3. Cardiovascular diseases

q2p8p4

q2p8p5

q2p8p6

2.8.6. Kidney diseases

q2p8p7

2.8.7. Chronic respiratory

q2p8p8

q2p8p9

2.8.9. Insomnia

q2p8p10

2.8.10.Arthritis/ Rheumatism

q2p8p11

q2p8p12

2.8.12. Dementia

q2p8p13

2.8.13. Epilepsy

q2p8p14

2.8.14.Psychosis

q2p8p15

2.8.15. Parkinson's

q2p8p16

2.8.16. Other Specify

q2p8p16specify

q2p9p1

2.9.1 Had difficulty doing leisure activities which you would like to do?

q2p9p2

2.9.2 Had difficulty looking after your home, e.g., DIY, housework, cooking?

q2p9p3

2.9.3 Had difficulty carrying bags of shopping?

q2p9p4

2.9.4 Had problems walking half a mile(1km) ?

q2p9p5

2.9.5 Had problems walking 100 yards (90 meters)?

q2p9p6

2.9.6 Had problems getting around the house as easily as you would like?

q2p9p7

2.9.7 Had difficulty getting around in public?

q2p9p8

2.9.8 Needed someone else to accompany you when you went out?

q2p9p9

2.9.9 Felt frightened or worried about falling over in public?

q2p9p10

2.9.10 Been confined to the house more than you would like?

q2p9p11

2.9.11 Had difficulty washing yourself?

q2p9p12

2.9.12 Had difficulty dressing yourself?

q2p9p13

2.9.13 Had problems doing up your shoelaces?

q2p9p14

2.9.14 Had problems writing clearly?

q2p9p15

2.9.15 Had difficulty cutting up your food?

q2p9p16

2.9.16 Had difficulty holding a drink without spilling it?

q2p9p17

2.9.17 Felt depressed?

q2p9p18

2.9.18 Felt isolated and lonely?

q2p9p19

2.9.19 Felt weepy or tearful?

q2p9p20

2.9.20 Felt angry or bitter?

q2p9p21

2.9.21 Felt anxious?

q2p9p22

2.9.22 Felt worried about your future?

q2p9p23

2.9.23 Felt you had to conceal your Parkinson's diagnosis from people?

q2p9p24

2.9.24 Avoided situations that involve eating or drinking in public?

q2p9p25

2.9.25 Felt embarrassed in public due to having Parkinson's disease?

q2p9p26

2.9.26 Felt worried by other people's reactions to you?

q2p9p27

2.9.27 Had problems with your close personal relationships?

q2p9p28

2.9.28 Lacked support in the ways you need from your spouse or partner? (If you

q2p9p29

2.9.29 Lacked support in the ways you need from your family or close friends?

q2p9p30

2.9.30 Unexpectedly fallen asleep during the day?

q2p9p31

2.9.31 Had problems with your concentration, e.g., when reading or watching TV?

q2p9p32

2.9.32 Felt your memory was bad?

q2p9p33

2.9.33 Had distressing dreams or hallucinations?

q2p9p34

2.9.34 Had difficulty with your speech?

q2p9p35

2.9.35 Felt unable to communicate with people properly?

q2p9p36

2.9.36 Felt ignored by people?

q2p9p37

2.9.37 Had painful muscle cramps or spasms?

q2p9p38

2.9.38 Had aches and pains in your joints or body?

q2p9p39

2.9.39 Felt unpleasantly hot or cold?

q3p0p1

q3p0p2

3.0.2 Self-care

q3p0p3

3.0.3 Usual activities

q3p0p4

3.0.4 Pain/discomfort

q3p0p5

3.0.5 Restlessness

q3p1p1

3.1.1 How many relatives do you see or hear from at least once a month?

q3p1p2

3.1.2 How many relatives do you feel close to, and can call on them for help?

q3p1p3

3.1.3 How many relatives do you feel at ease with whom you can talk about privat

q3p1p5

3.1.5 How many of your friends do you see or hear from at least once a month?

q3p1p6

3.1.6 How many friends do you feel close to, and can call on them for help?

q3p1p7

3.1.7 How many friends do you feel at ease with whom you can talk about private

q4p1a

a) Measurement 1: a1: [systolic_1]

q4p1b

b) Measurement 1: a2: [diastolic_1]

q4p2a

a) Measurement 2: b1: [systolic_2]

q4p2b

b) Measurement 2: ab2: [diastolic_2]

q4p3a

a) Measurement 1: c1: [systolic_3]

q4p3b

b) Measurement 1: c2: [diastolic_3]

systolic_average

dystolic_average

Total: 111